La solitude d'un essai clinique
Écrit par Sara Mazzilli
“I didn’t know it would feel so lonely being in a clinical trial” - Here’s one of the many lessons learned by Rare Human Lindsay, who joined a clinical trial earlier this year for her myositis.
Lindsay talks about how hard it is not to have a community to turn to, especially when there are only a few patients with her rare disease who have experienced the same treatment she just went through.
La prise en charge des maladies rares peut s'avérer extrêmement complexe. Si vous souhaitez en savoir plus sur les dernières opportunités de recherche concernant votre maladie rare, vous pouvez contacter l'équipe d'assistance Know Rare à l'adresse support@knowrare.com.
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